I have an enormous headache and not a lot of energy to think all this through today. Bullet points, it is.After consulting with neurology, radiology, and the cardiac team, we've decided that we will wait to close Keegan's PFO for another year or so. He...
Long day today. Keegan had an MRI and MRA of his brain performed around noon. He handled anesthesia well and came back up to the room around 2pm, only to be shuttled back off for an echo and bubble study of his heart about 30...
I'm struggling to write this update because I really can't believe we're sitting here once again inpatient. Yes, inpatient, and I really don't even want to put into writing why. We are waiting here overnight for Keegan to have an MRI and MRA tomorrow morning...
Information from Aunt Alex on our team, K's for Keegan, for Keep the Beat, the 1st annual It's My Heart walk to raise awareness and funds for congenital heart defects:Hello Friends,It’s My Heart is a non-profit organization created to provide support to and advocating for...
Technically, we've been home since last Wednesday evening, so I suppose this update is about four days overdue. Trying to adjust our schedules and keep up with Keegan's medical issues has kept us pretty busy since we arrived home. Keegan is doing okay. Could definitely...
It looks like we're wrapping up this inpatient stay, although not nearly in the positive way that we would like. Ideally, the doctors don't like to send patients home on TPN, but we're not really in an ideal situation here. Gray and I said over...
Well, try as we might, we couldn't keep Monday from coming again. Funny how it always seems to come around this time of week. Bummer.Evidently, Keegan's tummy is not fond of Mondays either. We stayed the course. We made no changes, and yet, today was...
After yesterday's set-back, the decision was made today to hold Keegan's tube feeds at 10cc/hour for the next few days. It will take another variable out of the overall equation, so we should have a better idea how the drugs are/aren't helping him. The more...
In order to refocus my energy this evening, I'm going to start this post with the FUN parts of our Saturday.After 10 LONG days, we finally got to see this little beauty today!Miss A is definitely cutting those top teefers. Poor thing, she's only pushed...
I'm going to make this short because it's Gray's night at the hospital, and I'm very much looking forward to crawling into my own bed tonight! Ironically, I had to download a white noise app on my phone because the stark silence of an empty...