Well, I guess since my last substantive update was over a week ago, it's probably time for a little catch-up. Luckily, there's not a lot new to report! We were very blessed to spend our Christmas home and with our families. Keegan and Audrey both...
For I know the plans I have for you, says the Lord, plans to prosper you and and not to harm you, plans to give you hope and a future.Jeremiah 29:11...
We hope your Christmas was merry & bright...
Today, we received the best gift possible. Today, we met Johnston's parents and brother! We are...
I would really like to start off this post with a BIG thank you to Susan, Terri, Kathy, and Amanda at Children's. I'm not sure any of them will ever read this, but I would be remiss to not mention that their hard work resulted...
Tomorrow will be a busy day for Keegan. He has a GI appointment, IV infusion of the new immunosuppressant, pentamadine breathing treatment, weight, labs, and port reaccess. Most of it is routine except for the GI appointment. Keegan will probably disown me one day for...
Here are a few pictures from the rest of our week...
...all the wheels were turning in the general direction of home today. Getting ready to be discharged is always a bear, especially with TPN and tube feeds. But at least it's not with dialysis! I did not hear back from the care coordinator to know...
Sunday was much the same as Saturday. We will see what GI says tomorrow morning, but after discussing everything with the doctors this morning, it appears tomorrow will be consumed with getting Keegan ready to be discharged...