My life came somewhat full circle today. My baby girl started ballet. Audrey is attending a week-long workshop at Texas Ballet Theater. My parents spent hundreds of hours over fifteen years sitting outside a ballet studio, and now, it's my turn. I can't fully describe...
As tends to happen, I spoke too soon. Keegan's ANC had fallen again when we drew labs yesterday, so we started round 2 of GCSF. The team wants to give him one more week to see if he will recover, but it seems fairly obvious...
These pictures are slightly overdue with our subsequent inpatient stay, but they are worth it! We celebrated Audrey's third birthday at the beginning of June in true princess style, per her request. She specifically wanted a "Princess and Cinderella party with a bounce house and...
Keegan celebrated our country's birthday with a pretty big milestone. His first swim in over a year!Hat? Check. Goggles? Check. Rash guard? Check.Floaties? Check. Flippers? Check.Let's get this party started!Our little fishSign of a good July 4th partyYep. Think he's got it down.And what made...
Just a quick note to say we are all ok and still at home. Keegan's blood culture from the ER last Saturday (after the second chewing incident) grew back a type of strep that was rare enough that our transplant team hadn't ever heard of...
My brain is fried. Absolutely, positively fried. Here's why, and I think you'll understand. I'm going to do my best to make this make sense. Please forgive me if it doesn't.FRIDAY:We spent all day preparing for discharge. By the time all his medications were delivered...
Today marked Keegan's 55th round of general anesthesia. That's an average of 11 surgeries/procedures per year of life. Only slightly ridiculous at this point.It was a very long day, but the port has been fixed. It is working fine for now. Unless Keegan throws a...
I am honestly having a hard time writing this post. After today, I have no idea how Keegan has not been hit by lightening with the rarity of things that happen to him. I'm buying him a powerball ticket tomorrow. There has to be a...
Not-so-great parts of Tuesday:Keegan is still not acting like he feels his best. This could be part "hospital hysteria", but I've seen him stuck here when he really is ok. This is not it. Not quite sure why yet.The antifungal medications have some of his...
Once again, I'm a day behind in updating about this inpatient stay. That is usually a good thing when Keegan's in the hospital because it means there isn't anything too pressing to make a record of medically. Yesterday, Keegan continued to bear the brunt of...