Keegan's having a bit of a better week with his intestinal problems. He is really excelling in occupational therapy, mainly working on his upper body strength now. Feeding therapy isn't really progressing yet, but it will just need time. We will run...
Keegan has a renal ultrasound tomorrow to get a better look at his kidneys. We have a few more questions to follow-up with the nephrologist after the results are back. We will let you know what we learn. He's still struggling with...
Well, Keegan's still home and holding his own. I'd hate to think where he'd be right now without the hydration and calories he's getting from his tube...
Just a quick update. I'm not sure how many of y'all are following our mini-updates on Twitter, and even if you do, the last few were kinda vague. Keegan's GI issues have been pretty bad this week. We're trying to stay positive...
We've had a busy start to the week. I probably don't have much naptime left to post this, but I'll try anyway. Monday was transplant clinic. Keegan had two blood draws, a chest x-ray, an echo, an EKG, a breathing treatment, and...
Really sorry about the delay in posts. We're still at home and still hanging in there. Unfortunately, the same cannot be said for our internet connection. Every time we think it's working for good, we say "good, we can post an update...
So, this week's been pretty busy. We'll start at the beginning, since that's always a great place to start. Right? Lots of info, so stay with me!MONDAY - Early Childhood Intervention planning meeting. This went well, if you ignored Keegan's insistent,...
See, we get to title this post "New Pics" because there's not a lot of news on the medical front. Insurance, medicare, and nitty-gritty who-pays-for-what/why-are-WE-paying for this matters are another story, but as far as Keegan's concerned, no news is good news. We...
Thank you for keeping Keegan in your prayers as we reran his labs yesterday. His immunosuppressant levels (amount of the drug in his system) was just a hair low, so we made no changes and will recheck on the 30th. Keegan's cardiologists in...
Well, once again I apologize for the delay in updates, but we've had such small tidbits of info that I tend to wait until we have enough info for a true update. Lately, I've been praying so hard and thinking so much of our...