10 Jan Update
We didn't want our friends and family to worry for lack of posting. We had a very encouraging visit with GI yesterday. We truly feel this new doctor is looking at Keegan's case with fresh eyes. He has some good ideas, but...
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08 Jan Update
I just wanted to post a quick update to ask for your prayers for Keegan. He is struggling with his stools, and his diaper area is terribly irritated because of it. His liver function was very concerning in today's labs, and his GI...
05 Jan Update
I'm so sorry for the lack in posts. To say we have been crazy busy just trying to get our feet on the ground here would be the understatement of the week! We've had so much help from friends and family watching Keegan...
30 Dec Home…Again
We just made it home a little while ago. Keegan had just enough energy to play while I set up his home pumps and then crashed for another nap. He still has not gotten used to his car seat or crib again, but...
29 Dec Update
Keegan slept pretty well overnight. His fever is still gone, but he continues to throw up and have bad diapers. The diapers are the most frustrating for us because they look exactly like they did before we started getting results with the enzymes...
28 Dec Update
Keegan had an ok day yesterday. He spent most of the day asleep, catching up from the last few nights. He hadn't thrown up since the night before in the ER, but he was having some pretty bad diarrhea again. When he...
27 Dec Back at Children’s
So, here we are back at Children's. We had been meaning to update again, but we've been pretty busy with Christmas and trying to get organized at home. Keegan has been throwing up at least twice a day since we came home, and his dirty...
24 Dec We Made It!
Keegan is HOME!! Yesterday was very stressful and didn't go nearly as planned, but we made it home nonetheless. We got here by about 7pm. Keegan was scared to death of being in his car seat, but hopefully, he'll get used to...
23 Dec Update
Ok, so very quick update. Yesterday things started spiraling out of control, putting us to Christmas Eve or after Christmas for going home. Keegan threw up 3 times; his diapers were questionable, and it appeared insurance was not going to cover his TPN...
20 Dec Update
I've definitely jinxed it. Our new "outta here" date is Tuesday. We've had some delays getting the home TPN/lipids pumps delivered and getting all his meds ordered and delivered, among other general issues. As we learned at Thanksgiving, getting anything done during...