Just a quick note with what we've learned since yesterday's procedures. Keegan's hematologist/oncologist, Dr. Rodgers, said there is no evidence of post-transplant lymphoma in his bone marrow, which is great. We will still wait for his scope biopsies before completely ruling it out, but we're...
Keegan did well throughout his procedures today, and we may have a glimmer of hope for an answer finally! First, they repeated his upper endoscopy. They noted some flattening of the villa in the stomach that help digest the food, which can be...
We had a care conference this morning with Keegan's transplant team, GI doctors, and hematologists. We have scheduled him for another upper endoscopy/colonoscopy on Thursday at 7:30am. Keegan has had blood in every dirty diaper since Friday, and GI believes it's coming from his lower...
We've had a mostly quiet weekend for Keegan, again in the "two steps forward, one step back" fashion of recent weeks. He is still having on average 14 dirty diapers a day, and most of them have had blood in them for the last...
Keegan has had quite a few ups and downs the last few days. His fever has broken; he's gained a touch of weight, and he has had a good attitude most of the time. The cystic fibrosis bloodwork came back negative, and his blood counts...
Good news first - Keegan had fewer number of dirty diapers and a bit of weight gain between the last two days. The dirty diapers aren't any less scary unfortunately, but we are happy for any bit of good news. The bad news is that...
Well, what did I say about not saying the "h" word until we were actually on our way there? Keegan lost a bit of weight over the weekend. Not enough to be terribly concerned, but it's not positive weight gain either. The doctors would like...
This weekend is an official "Leave Keegan Alone" weekend. No poking, no labs, just see how he does over the weekend. Mainly, we'd like to see him gain some more weight, lessen his diarrhea, and at least have stable blood counts on Monday. I think...
Keegan is still in good spirits. He even went to the playroom with Mamie this morning while I was at work to make paper turkeys and play with the clowns. He continues to have a low-grade fever, diarrhea, stomach cramping, and plenty of...
Today was more of elimination of possibilities again than answers. Keegan was again in a pretty good mood today with lots of smiles and monkey faces. His white blood cell count was up a bit, and he is up to 15 pounds again....