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Yesterday was my first day of taking defense court appointments. When I got home from the courthouse, I told Keegan he was the only person who could ever get me to do this. See the sacrifices I make for this kid? Crossing...

Clinic went much better yesterday than the last time Keegan was sedated for an echo. Trial and error, I suppose. He was still a bit of a mean drunk but not nearly as bad as before. Chest xray, EKG, and echo all...

Just a quick post to say the sleeping champ is back! He slept from 8:30pm until 6:15am this morning with only one little peep at about 12:30am, just needing his pacifier back!! Other mornings when he's slept well, I get a litle nervous,...

Sorry it's taken a few days to get the clinic visit details up. It's been a busy few days, but everything is going well. Keegan weighed in at almost 13 pounds exactly, and he's now 23.5 inches tall (or over 3 apples tall,...

I just wanted to post an update about Keegan's cylex function that we received this week. This is the test to determine how his immune system is functioning. Keegan's level came in at "low" which means his immune system is very suppressed. ...

As expected, yesterday's clinic visit was pretty rough, but all in all, things are still looking good. Chest x-ray and EKG were fine as usual. His labs were good; no changes to meds except to stop his epogen shot because his hemoglobin was...

Keegan went to see Dr. Lestz today for his 4-month "well baby" check-up. She was so excited to see how well he was doing. When we told her that Dr. Fixler said to treat him as a healthy baby for feeding/sleeping/developmental milestones, she...

Yesterday was our first "every other week" clinic visit. Although, we ended up going last week for a bit anyway. It went very well. He weighed in at 11.2 pounds again, but it was a different scale. He could have gained...

We hope everyone had a wonderful Christmas. Keegan sure did! His two big gifts were a jumper and an excerciser. He hasn't quite figured out that he can make himself jump yet, but he's getting close! He also got a high...

First of all, happy 3-month transplant anniversary to Keegan! Now on to details from clinic, we officially have a little piglet, not a "little bug"! 10.86 pounds!! Since he's in the 5th percentile and gaining weight so well, we now get to...