01 Feb Clinic Update
Sorry it’s taken a few days to get the clinic visit details up. It’s been a busy few days, but everything is going well. Keegan weighed in at almost 13 pounds exactly, and he’s now 23.5 inches tall (or over 3 apples tall, as his Daddy prefers to say). His chest xray looked great, and for the first time, he didn’t scream bloody murder when the radiologist and I held him down. Baby steps, baby steps! His EKG was a little off, but he was laughing and moving during it. I think I’ll take it being off one week since he was happy! Labs looked alright, but his white blood cell count was up again, so back on Cellcept we go. We increased his other anti-rejection medicine up a little again, but we were able to take his iron dosage down to once a day. He was a happy little camper during the entire visit until his Synagis shot (that’s the $2000 one that prevents RSV). The shot has to be administered in the muscle of his thigh, and it’s a pretty big needle. He cried so hard he was sweating, poor Bug.
As usual, a long day at clinic means he’s cranky and doesn’t sleep well for a few days. He’s coming back around to his normal “good sleeper” self though. It doesn’t help any of us to follow a stressful day at the hospital with no sleep, but what are you going to do about it? Not much else is going on. I turned in my applications to take some court-appointed defense work yesterday; we’ll hear about that soon. Keegan’s slowly coming back around to liking his cereal, and we’re going to try some oatmeal-based cereal once I can get to the store. Those of you in Dallas know about the crazy winds and cold snaps we’ve been having, so once again Keeg & I are prisoners in the house. At least it’s been sunny!
On the fundraising side of things, our dedicated campaign members are working up a storm. I think the final decision has been for a fishing tournament and possibly a wine-tasting/wine-making event. More details should be up soon, so keep checking the VOLUNTEERS tab above. You can always email or call Marci to be kept in the loop about what’s going on. Lastly, the Dallas County Defense Lawyers’ Association (DCDLA) has asked us to allow them to host their annual golf tournament in May in Keegan’s honor. Each year, they pick a charity or deserving family/person to be the beneficiary of the golf tournament for the last 26 years. Two years ago, it was to help the son of a prosecutor who died suddenly, and last year, it benefitted the son of a local attorney who had experimental brain surgery. We are honored and very excited that they have chosen Keegan this year. I suppose it is fitting that I am now almost on “the dark side” myself! =)
Well, it sounds like the Bug has finished his nap…I can hear him talking to his Taggies Puppy in his crib. No more clinic visits until Valentine’s Day. Then he will be sedated for his echo again, no fun. We wish you all a great rest of the weekend and good week next week. Take care, and thanks for keeping up with us.