11 Feb Crazy Day
Wow, what a busy day! We started off the day bright and early at Children’s Legacy for Keegan’s renal (kidney) ultrasound. He did very well during the scan. At least it didn’t take very long! Cardiology snuck me a copy of the report this afternoon, and it looks like there were no discernable changes in the size of the right kidney since October. That was what we wanted to hear. We’re hoping to be able to go to ultrasounds every 6 months now. We want Keegan’s right kidney (the only properly functioning one) to grow with him, so these tests will help us make sure that it doesn’t start to get smaller or stop growing. There were two comments on the report that the cardiologist said were odd and might need follow-up, but I’m hoping to hear from the nephrologist in the next few days to go over those.
I dropped Keegan off at home with my mom, and Gray and I headed to Children’s downtown for the baby’s echocardiogram. Her heart looks absolutely perfect right now! Praise God! The doctors didn’t even think we need to do any more fetal echos, just at least one more sonogram, before she’s born. We’ll follow up after she’s born, but for now, she looks great! I have to say that it was so nice to get good news for once and especially to get that news from a team of people you know and who care dearly for your family. We are certainly relieved, but it still is a whole different set of fears than with Keegan. I’m not sure I was even that scared that there would be something wrong with her heart – that’s actually something I know how to handle! On the other hand, I have NO idea how to care for a normal baby! I brought home a one-month old on a strict schedule (albeit with two moving boxes full of meds, pumps, and monitors…but still!). It may sound silly to you, but trust me, it’s very real to me. I have seen God’s faithfulness in Keegan’s life, and I just struggle to remember that He is faithful to us all…sometimes we just have to choose to see it.
Then, there was the unexpected doctor’s visit of the day. While discussing Keegan’s current runny nose and cough, the transplant team requested we have Keegan seen by his pediatrician to ensure we weren’t missing anything. As you all know, there’s some rampant nasty colds, viruses, and RSV going around. I was trying to be the composed heart mom and NOT freak out about this little illness. Oh well. Of course, our pediatrician wanted to see him right then, so I rushed home to get him up from his nap to head to Baylor Frisco to see her. He checked out just fine; it’s either allergies or a cold or a virus. Who knows but not much we can do about it. I feel as if he would have crashed by now had it been more serious, and he had a scheduled shot for his white blood cell count tonight, which will hopefully give his little body a bit more “fight”. I’ve been battling the allergies/drainage for over two weeks now. It just seems like a losing battle lately! I know A LOT of you are suffering from the same thing, and my prayers are with you!! We’re ready to have our old Keegan, and not this couch potato, back and running like a wild man.
Thank you so much for your prayers, encouragement, and well wishes for our family today. We definitely felt them. It is so easy to fall into the trap of doubt and fear, and the support of our family and friends renews our strength daily. We also can’t tell you how much we appreciate you keeping our friends lifted up in prayer also. I know they cherish it as much as we do.
“Your words have supported those who’ve stumbled; you have strengthened faltering knees.” Job 4:4