18 Jun Father’s Day & Monday update
Once again, I’m a day behind in updating about this inpatient stay. That is usually a good thing when Keegan’s in the hospital because it means there isn’t anything too pressing to make a record of medically.
Yesterday, Keegan continued to bear the brunt of the steroid bolus and the remainder of tis infection. He was an emotional train wreck and still very tired. As of today, he is back to his regular steroid dose. He still had quite a few meltdown moments today but overall, much better than yesterday. His peripheral cultures post-line removal continue to be negative, so we are still on track for surgery to place a new port on Wednesday with a potential discharge date of Thursday. Today, he had an abdominal ultrasound to check for any abscess caused by the yeast translocating to his gut. We already did an echo to check for colonization there, and during his surgery, they will check his eyes. Those are the three most likely places where the yeast could have spread from his line. We assume they will all be ok, but we have to check to be sure. We also had to replace his IV today, which took three tries and was no fun for anyone involved. The new line is working much better. Let’s all just pray it stays that way until Wednesday.
Father’s Day was also yesterday, and I missed the chance to give a shout out to all the daddies in our lives – Gray, my dad (BD), Pops, Poppy, Grandfather, and Papaw. You are so grateful to have each of you in our lives, and I’m not sure how we would survive this crazy life without you.