23 Jun Home
It was a very long day with a lot of information to process. The team kinda wanted to keep him another day, but we decided to come home tonight. Even though it was another rush-hour discharge that brought us home right before bedtime.
Keegan’s heart function is stable – no improvement, no change. We’ll take it. Repeat the echo in 2 weeks. Got more information about Keegan’s GI problems. Interesting. Lots to process there. Started a new treatment for the “mystery wound” to be followed up on Friday in clinic. No drainage really from the port, although we did have to do a last minute needle change right at bedtime because the hub on the line somehow came off during the day. Sheesh.
I will update with more information soon. I promise. Lots to think about and research. Lots left to do tonight. And one whopper of a headache. I apologize for the shorthand tonight. We are very thankful for your prayers as we continue to make the best decisions we possibly can for our Bug.