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Sunday Update

14 Mar Sunday Update

Posted at 02:41h in Uncategorized by
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Positives for today:

  • Albumin and IV lasix pulled a lot of fluid off of Keegan. 
  • Fever has been gone for over 24 hours.
  • Several periods of improved energy.
  • Blood drainage has almost stopped.
  • Blood cultures all came back negative at least 48 hours.
  • Stopped both IV antibiotics.
  • Got his TPN and lipids started back up for 24-hours a day. 
  • Gray felt much better by this morning, and he was able to come back up to the hospital this evening.

Not so positives for today:

  • Keegan didn’t get a lot of sleep last night.  He seemed to be in pain, but we’re not sure what was causing it.  It appeared to be the urination in response to the lasix, but we aren’t sure.
  • By late this morning, Keegan’s urine output had greatly decreased again.  We are trying to avoid giving him too much lasix.  His diarrhea can cause dehydration, so we don’t want to contribute to that by pulling too much fluid off.  He’s already starting to swell back up though.  His poor little kidney is probably just stressed to the max after the last few months.
  • In addition to the rotavirus, Keegan tested positive for c-diff this afternoon.  It’s an opportunistic GI infection that affects those on antibiotics and the immunosuppressed.  C-diff is just as bad as rotavirus, so the combo is bad news.  Again, I doubt I have to say it, but this is some of the worse GI stuff we’ve ever seen….and we’ve seen alot from Keegan.  We have started Keegan on a new drug that has only been tested in a few studies, but it has been shown to be somewhat effective in shortening the duration of the contagious period for c-diff and possibly rotavirus too. 
  • His bone marrow response hasn’t improved yet.  Could be worse though. 

Hey, at least there are more positives than negatives.  Even if the negatives were pretty awful.  Thank you so much for your prayers for Keegan.  We really do appreciate them more than you know.  For tonight, we’re praying for some good sleep and for his kidney to not go into hibernation again.  That’s all for now.  A new week starts tomorrow….a new attending physician, new residents, oh boy.