13 Mar The Force is with him
Keegan perked up for a bit this afternoon. He colored, played with some cars, and played a memory game on the phone. It wasn’t too long of a run, but it was nice to see. I think the fever breaking really helped.
Unfortunately, his little energy spurt was about the only good thing. He continued to not have any urine output at all throughout the day and got really puffy again. Right now, we think it is a different type of swelling called “third-spacing”. Fluid has leaked out of his veins and cells and into surrounding tissue. We are running another infusion of albumin and IV lasix right now, hoping to pull that fluid back into the veins and that his kidney will wake up and drain it off. He is still draining blood from his g-tube, and his blood counts aren’t great. He is on 24 hours of lipids and TPN (IV nutrition) again. We’re hopeful that getting some nutrition in him will help his bone marrow perk back up. I doubt I have to note that the GI output is beyond horrible, but at least he’s not throwing up anymore.
In worse news, Gray is now sick. We were really hoping that the rest of the family would get lucky and stay healthy. Gray went home this afternoon, so it’s just me for awhile. We’re praying Gray can fight this quickly. It’s always better to have both parents here. There’s no opportunity for breaks when you’re by yourself. It’s hard enough to entertain a kid stuck in bed and on contact isolation all day with two…nearly impossible with one. I’m sorta hoping Keegan’s energy doesn’t come back in full force until Gray is well again! And in case you were wondering, Audrey is still doing fine. This virus has a 2-day incubation period, and she hasn’t been around Keegan since Wednesday. That should mean she dodged the bullet, although stranger things have happened in this family.
On a fun note, right when Keegan was at the tail end of his little energy spurt this afternoon, he had a surprise visit from some special dudes who came a very long way to meet him:
