18 Jan Update
As expected, yesterday’s clinic visit was pretty rough, but all in all, things are still looking good. Chest x-ray and EKG were fine as usual. His labs were good; no changes to meds except to stop his epogen shot because his hemoglobin was normal for two times in a row. They pulled blood for a test to determine the effectiveness of his suppression, but we have to wait another day to tget the results.
Yesterday was the first time Keegan was to be sedated for his echo. He spit a lot of the sedation medication out because it tasted horrible. He never really went under, and he woke up in the middle of the echo really hungry. He didn’t drink the Pedialyte earlier in the morning but took some then to at least finish the echo. The nurses said usually kids coming off this type of sedation are “mean drunks” or “happy drunks.” Well, Keegan is a mean drunk. He screamed for about 15 minutes unti he finally passed out again. It’s also taken quite a bit of time to work that medication completely out of him too, if you know what I mean. At any rate, the echo looked fine in the end. The clot is still there but unchanged. The doctor didn’t seem worried.
One bad thing was that he initially seemed to have lost a pound. That worried me, and evidently it worried one of the nurses enough that she called a tech in to look at the scale. Turns out their scale was off over a quarter of a kilo. We ended up having to go the pediatrician today to have her look at a mild patch of ezcema on the back of Keegan’s neck, and we weighed him there – 12 pounds!! Getting big!!
Well, I’ll have to wrap this up. Keeg’s getting a little tired of being in his jumper. He finally figured out he can move around on his own. He’s been twisting, swaying, and going up and down for about 20 minutes now! We’re going to go taste some rice cereal – oh boy!
The campaign crew is meeting tonight to vote on what fundraisers to try this year, so we’ll have some more info on that for everyone soon. We received the account balance for the end of last month, and it was AMAZING!! Thank you, thank you, thank you to everyone who has donated. It truly will help Keegan and many other transplant kiddos. I hope everyone is staying warm out there. Take care, and thanks again for your prayers.