02 Nov Update
Clinic yesterday was very long and tiring, but everything was okay. Keegan weighed in at 7lbs 8 oz and almost 20 inches long. His EKG and chest x-ray were good. We didn’t get an official report on the echo, but it sounded like there was no change from two weeks ago. His white blood cell count was pretty low, so they backed off a few of his medications. What the doctors think may be happening is that his immune system is adapting to the suppressed state and staying that way. Since his immune system is so immature, it may be recognizing the suppression as “normal” whereas an adult’s system would require constant medical suppression. That means he may not need as many meds to suppress his system and eventually may not need as much suppression to ward off rejection. His body may not be as apt to recognize the new heart as foreign. This is all speculation of course. We’ll just have to wait and see.
In other news, we are trying to transition this site over to the new COTA site, so bear with us as we figure it out.
Please continue to pray that Keegan will eat and grow to become stronger every day. We are praying that he will continue to not need as much medications and that the doctors are able to find a happy medium with the meds so that he doesn’t go into rejection but is not so suppressed that he is constantly battling infection. Thank you for your continued showing of love, support, and prayer.