02 Oct Update
Keegan is still on the SiPAP, but his lungs are very slowly starting to work better and better. He is still working on getting rid of the last amount of swelling. Some of it has settled around his lungs, so the doctors are watching that very carefully. He’s off pain and sedation completely now. Fortunately, we have been able to hold him for a little bit each day, and we can swaddle him now. Both seem to help him settle a bit. He’s most fussy when his diaper is wet; I know that’s not a revelation per se, but when you’re on diuretics to make you get rid of swelling, it makes for even more wet diapers than usual. Gray had the watch last night, and he got a quick review of how careful you have to be with little boys and diaper changes!
Today is going to be another day of very slow watching and waiting. The only other thing that may happen is that he may get the PD catheter out finally. We’ll let you know how that goes.
We’ve been in touch with COTA, the transplant fundraising organization. They are setting up our account, and then we can really get going on that front. We’ll probably be posting something soon about what you can do to help. Thanks again for your prayers more than anything. Even though things are slowing down, Keegan is still very critical, and your support is helping him day by day.