27 Nov Update
Keegan started his enzymes last night. It will take 4 to 7 days for them to begin to work. We’ve taken him off the antispasmodic to see exactly how he does with the enzymes. The biopsies from his recent scopes were normal, including the irritations in his colon. They are likely just from his GI inflammation and should heal well. We’ve already seen less blood in his diapers. The doctors are unsure why Keegan’s pancreas isn’t working correctly, but if he responds to the enzymes, then we won’t do any more testing to find out why. GI also thinks the immunosuppressant Keegan was taking, Prograf, was irritating his system in a completely different way, so we’ll leave him on the new one, neoral, for now. We still don’t have an update from hem/onc, but their tests won’t be back until next week probably.
We’re gearing up for a quiet holiday weekend. We’ll draw labs to check Keegan’s blood levels tomorrow, and then we’ll probably leave him be until Monday. We are so thankful for each of you and for your love and support. Have a great Thanksgiving. We’ll update again tomorrow.