11 Nov Update
Well, what did I say about not saying the “h” word until we were actually on our way there? Keegan lost a bit of weight over the weekend. Not enough to be terribly concerned, but it’s not positive weight gain either. The doctors would like to see several days of less than 30cc of stool per kilo of body weight a day, and Keegan hasn’t had one yet. His blood counts had continued to go down over the weekend, so we’re not going to pull any more until Wednesday. GI wants to leave him at the current 10ml/hour of Neocate for another day or so and see if the probiotics start to help his tummy even back out. That’s about it for now. Keegan continues to be in a good mood most of the time he’s awake, and he still loves to flirt as much as possible. We’ll see how he does this week, and we’re hoping to be home for Thanksgiving. The genetic bloodwork for the bone marrow disorders is still pending. It could take up to two weeks, and we just sent it out last Tuesday. Thank you as always for your support and encouragement. It keeps us going every day. We never want Keegan to stay in the hospital one minute more than he needs to, but we know that he is in good hands and being lifted up in prayer every day. Thank you so much.