04 Nov Update
Yesterday was a day of rest and no poking for Keegan. The blood and TPN helped restore his energy, and he was in a very good mood yesterday and today. Late last night, we started giving him an extremely elemental nutritional mix called Tolerex through his tube at only 5ml/hour. It is completely fat-free but has carbs and protein for calories. We’re still giving him max-calorie TPN and lipids to add to his caloric intake. Stil, he continues to have diarrhea, and he now weighs less than 15 pounds.
The biopsies are still not back yet, hopefully tomorrow. We met with Dr. Semrin from Children’s GI. He spent almost an hour going over Keegan’s history. Of course, he said we have to wait for the biopsy results. He’s also going to get the slides from Keegan’s scope that was done at Medical City to see if there’s any changes. He ordered some more blood and stool tests (yeah), and he’s asked for a hematology consult to come in. Keegan’s low white blood cell count, anemia, and high inflammatory counts could indicate something going on with his bone marrow.
We’ll let you know what we find out, when we find it out. Please continue to keep Keegan in your prayers. We appreciate it so much more than you know. Thanks.